Sickle Cell Disease

CHARTA - a health consortium

2009 Tutu Fellow Dr Julie Makani has launched CHARTA - a Consortium for Health, Advocacy, Research and Training in Africa. It aims to utilize data science in public health and genomics in Africa to address non-communicable diseases that include sickle cell disease, cancers, diabetes and cardiovascular diseases. These are responsible for over a third of the disease burden In Africa.

CHARTA will use public health data sets to describe the epidemiology of health and disease at national level as well as the genomic epidemiology of human genome, hematology/immunology profiles, and sickle cell disease. Regarding sickle cell disease, she hopes this research will provide the basis for future translation of health and research knowledge into a gene-based therapy. The consortium works with up to ten sectors and 16 disciplines or specialties at national, regional and continental level, reaching 15 countries directly and 54 countries indirectly. The overall aim is to improve health and research by national governments in a manner that Is sustainable and will attract further investment from public and private sector.

Coordinating for CHARTA is being done by the Muhimbili University of Health and Allied Sciences (MUHAS) in Tanzania, where Julie is an Associate Professor in the Department of Haematology and Blood Transfusion.

 

About AFLI

 

AFLIICONCROPPED

 

The African Leadership Institute (AFLI) focuses on building the capacity and capability of visionary and strategic leadership across the continent. Developing exceptional leaders representing all spheres of society, the Institute’s flagship programme is the prestigious Archbishop Tutu Leadership Fellowship. Offering a multifaceted learning experience and run in partnership with Oxford University, it is awarded annually to 20-25 carefully chosen candidates, nominated from across Africa. Alumni of the African Leadership Institute form a dynamic network of Fellows passionately committed to the continent’s transformation, bridging the divide between nations and ensuring that Africa is set centre-stage in global affairs.